Where have I been?
Posted September 6th, 2009 by Jane

No I haven’t posted for ages. Thank you for the lovely messages sent by other cyber routes. When I started this blog I never wanted it to become a chronological account of my physical deterioration from this disease. So yes, my silences do usually reflect bad physical times, when the disease is progessing along unknown [...]

 

Well at least the sluffi is getting better.
Posted September 13th, 2009 by Jane

I thought I had learned a new medical term: sluffi. Daily as the nurses peer at my weeping sores I think they are seeing something new. And so it is when lovely A. proclaims that there’s less sluffi. Sluffi, I discover, is the layer of damp, white, sligtly oozy material, actually dead skin left behind [...]

 

Day care
Posted September 20th, 2009 by Jane

At my hospice, in-patients not staying for death were encouraged to join ‘day-care’…a mysterious kind of opportunity for social and pyschological rehabilitation. I was pointed in the direction of the Tuesday group…for younger patients. It was nice to know that at just 60 I was still considered young.
Off I went. I arrived a little late [...]

 

As tears go by
Posted September 22nd, 2009 by Jane

Last week I found myself humming Marianne Faithful’s As Tears Go. And then my tears flowed.
I’d had some good days, in the hospice, cheery visits from friends made me feel I was ‘coping’ OK, doing the right ‘brave’ stuff’. But then it changed and all I had were everlasting rivers of tears. Methodome, the latest drug [...]