December 2008

Saying no to treatment?
Posted December 3rd, 2008 by Jane

I was musing the other night on all the chemotherapy I’ve had. Remembered the first lot, back for primary breast cancer, October 2003-February 2004. 6 doses of AC (Adriamycin plus cyclophosphomide.) Side effects probably the worse of all the chemotherapies I’ve had…even some of the dreaded nausea though as promised the anti emetics did work [...]


When people say the right thing
Posted December 3rd, 2008 by Jane

Cancerworld is fraught with normalworld people saying the wrong thing and picky difficult people like me just make it that bit harder.
So for today I offer as a model to cancerfree people this message from C. who responded to an e-mail I’d sent like this: “Good to hear from you. Sorry to hear that things [...]


Giving up???
Posted December 5th, 2008 by Jane

I am beginning to realise how hard it is to have a conversation about perhaps/maybe/possibly stopping treatments and how that is so readily seen as ‘giving up’ and ‘not fighting.’ And the hardness isn’t just in normalworld, its perhaps even more difficult in cancerworld.
I have never used the language of battles and fighting about cancer..such unhelpful metaphors, and [...]


Posted December 8th, 2008 by Jane

My CT scan last week showed that yes tumours in my chest wall and neck are bigger and that additionally I have cancer in lymph node in armpit on right side (everything has been on left side till this). My lungs are OK other than some inflammation at bottom of left lung which has been [...]


The language of CT scan reports
Posted December 11th, 2008 by Jane

When I read my scan reports…a couple of days after a friendly phone chat with oncologist, they always seem a bit different from how she reports them.
The blood clot for example is not just a ‘possibility’ but ‘a filling defect presumably thrombus seen in the left internal jugular vein.’ That explains the rush for heperon and [...]


PARP, presentations and posters
Posted December 13th, 2008 by Jane

I had a little frisson of excitement all week when I heard that a presentation on PARP inhibitors was expected at the big guns grown up cancer conference in San Antonio, Texas. PARP inhibitors are a new class of drugs and the man at the Marsden had suggested that after taxol and vinorilbine I might [...]