July 2009

The man at the Marsden
Posted July 3rd, 2009 by Jane

The man at the Marsden who I saw last week for a ’second opinion’ has brilliant communication skills. He’s one of the UK.s most respected oncologists. Communication skills and expertise in oncology don’t nessarily go together but they do with him. I like the way he has read my notes and my history and therefore knows [...]


Another brave lady has lost her fight…
Posted July 6th, 2009 by Jane

No not me…I’m not a ‘lady’, not particularly brave, and I am not fighting anyone or anything.
I am though fascinated by the language which accompanies cancer in general and breast cancer in particular. Pretty much weekly on the breast cancer on-line forums there are messages identical to the one above or nearly so, following the death [...]


Posted July 8th, 2009 by Jane

Vita, the breast cancer magazine, produced by the UK’s biggest breast cancer charity, Breast Cancer Care,drops FREE through my letter box. It is good to see a black woman who is living with secondary breast cancer photographed on the front cover.
Written in the style of Womans Own, a quick read and I feel lost, lonely and [...]


You just get used to it.
Posted July 8th, 2009 by Jane

My cocktail of drugs keeps changing. I’m now on 30 mg of morphine day and night, 8 mg of dextamthosone daily, 600 mg of gabapentine 3 times daily and 50 mgs of amytryptiline. My pills are lined up for swallowing nightly…with the wafarin and the senokot it is sometines 11 or 12 tablets. And the pain: [...]


Posted July 9th, 2009 by Jane

I could be paralysed with fear but it just feels like one more thing to mildly mull and reflect about. The ‘trajectory’ (big word which is an improvement on the dreaded cancer as a journey) of my disease is unusual (though not rare the medics keep saying) so for me there’s no spread yet to [...]


My cyber friends
Posted July 11th, 2009 by Jane

There’s a little group of us in breastcancercyberland sharing tribulations right now. Each of us a different story of new treatments, and lots of treatments and scared bits and sad bits. I cannot imagine cancer before cyberland.
And back in September I wrote a piece called: Spaces of pleasure which I hope celebrated some of my [...]


Posted July 19th, 2009 by Jane

Ceciley Hamilton is credited with the foundation of the first modern hospice in 1967 in south London. I remember its foundation and rather liked the idea of a holistic approach to death where spiritual, social and psychological needs were as central to dying as the physical ones. The concept too of a particular kind of modern [...]


Posted July 19th, 2009 by Jane

I wrote about this chemotherapy drug in my piece on The Man at the Marsden.
I got the first dose of caelyx on Thursday and so far brilliant…virtually no side effects…particularly usually by Day 3 (and this is Day 4) I am stretched out in a weak, tired limp stupour. Caelyx is supposed to be a [...]


There is no evidence…
Posted July 24th, 2009 by Jane

Strangely in the 10 months I’ve had this site I’ve not written yet about ‘alternative’ approaches. On other websites I find myself often repeating the words: ‘There is no evidence.’ Whether its challenging the myth of stress causing breast cancer, or of misletoe being a viable treatment, or the alleged benefits of a dairy free [...]


Health bulletin
Posted July 31st, 2009 by Jane

I have mentioned, though not named, the bush telegraph which passes on information about my ‘condition.’ I am always mildy surprised when somone rings up to say how pleased they are the pain is better..hey hang on a minute its not. Others are looking for magic from the chemotherapy and seem mildly put out when [...]